Recent Posts

Blog, epilepsy
Nick Lench is appointed as Trustee of Epilepsy Research UK
Posted 5th November 2021

Nick Lench is appointed as Trustee of Epilepsy Research UK

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epilepsy , genomics , RareDiseases , EVENT , precision medicine , EGM2021
Enabling Genomic Medicine 2021
Posted 15th October 2021

Enabling Genomic Medicine 2021

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Blog , Patient Advocacy , epilepsy , RareDiseases , CRELD1
Ensuring parents have a voice in their child’s care
Posted 24th September 2021

Ensuring parents have a voice in their child’s care

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Blog , Patient Advocacy , epilepsy , cerebral palsy
Helping to Further the Patient Impact of Genomics
Posted 4th June 2021

Helping to Further the Patient Impact of Genomics

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Blog , Patient Advocacy , epilepsy , RareDiseases , Chapter 8
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted 21st May 2021

Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

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Blog , Patient Advocacy , epilepsy , genomics , Ring20 , Chapter 1
Redressing the balance: Ring Chromosome 20 Syndrome
Posted 16th April 2021

Redressing the balance: Ring Chromosome 20 Syndrome

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Blog , epilepsy
Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy
Posted 1st April 2021

Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy

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Blog , Patient Advocacy , epilepsy , Chapter 1
Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy
Posted 26th March 2021

Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy

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1
Blog , epilepsy
Nick Lench is appointed as Trustee of Epilepsy Research UK
Posted 5th November 2021

Nick Lench is appointed as Trustee of Epilepsy Research UK

Read More
epilepsy , genomics , RareDiseases , EVENT , precision medicine , EGM2021
Enabling Genomic Medicine 2021
Posted October Oct 15th 2021

Enabling Genomic Medicine 2021

Read More
Blog , Patient Advocacy , epilepsy , RareDiseases , CRELD1
Ensuring parents have a voice in their child’s care
Posted September Sep 24th 2021

Ensuring parents have a voice in their child’s care

Read More
Blog , Patient Advocacy , epilepsy , cerebral palsy
Helping to Further the Patient Impact of Genomics
Posted June Jun 4th 2021

Helping to Further the Patient Impact of Genomics

Read More
Blog , Patient Advocacy , epilepsy , RareDiseases , Chapter 8
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted May May 21st 2021

Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

Read More
Blog , Patient Advocacy , epilepsy , genomics , Ring20 , Chapter 1
Redressing the balance: Ring Chromosome 20 Syndrome
Posted April Apr 16th 2021

Redressing the balance: Ring Chromosome 20 Syndrome

Read More
Blog , epilepsy
Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy
Posted April Apr 1st 2021

Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy

Read More
Blog , Patient Advocacy , epilepsy , Chapter 1
Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy
Posted March Mar 26th 2021

Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy

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1
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