![Nick Lench is appointed as Trustee of Epilepsy Research UK](https://blog.congenica.com/hs-fs/hubfs/Nick%20Lench%2c%20CSO%20Congenica%20appointed%20as%20Trustee%20Epilepsy%20Research%20UK.png?width=320&height=192&name=Nick%20Lench%2c%20CSO%20Congenica%20appointed%20as%20Trustee%20Epilepsy%20Research%20UK.png)
Nick Lench is appointed as Trustee of Epilepsy Research UK
Congenica Co-Founder and Chief Scientific Officer, Nick Lench, has been appointed to the Board of Trustees of Epilepsy Research UK (ERUK).
![Enabling Genomic Medicine 2021](https://blog.congenica.com/hs-fs/hubfs/Recdrings%20now%20availan%3Be.png?width=320&height=192&name=Recdrings%20now%20availan%3Be.png)
Enabling Genomic Medicine 2021
EGM 2021 featured some of the world's leading experts in precision medicine discussing the latest innovations in genomics. Watch their presentations here.
![Ensuring parents have a voice in their child’s care](https://blog.congenica.com/hs-fs/hubfs/Adam%20Clatworthy%2c%20who%20talks%20about%20the%20importance%20of%20parents%20and%20patients%20-%20who%20are%20experts%20in%20the%20complex%20conditions%20and%20symptoms%20of%20rare%20diseases%20that%20they%20live%20with%20-%20working%20together%20with%20clinicians%20to%20he.png?width=320&height=192&name=Adam%20Clatworthy%2c%20who%20talks%20about%20the%20importance%20of%20parents%20and%20patients%20-%20who%20are%20experts%20in%20the%20complex%20conditions%20and%20symptoms%20of%20rare%20diseases%20that%20they%20live%20with%20-%20working%20together%20with%20clinicians%20to%20he.png)
Ensuring parents have a voice in their child’s care
Guest blogger Adam Clatworthy talks about the importance of parents and patients working together with clinicians to help deliver diagnoses.
![Helping to Further the Patient Impact of Genomics](https://blog.congenica.com/hs-fs/hubfs/once%20upon%20a%20gene.png?width=320&height=192&name=once%20upon%20a%20gene.png)
Helping to Further the Patient Impact of Genomics
Dr Charles Steward was interviewed for podcast, Once Upon a Gene, where Effie speaks to others about their journey through life with rare disease.
![Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust](https://blog.congenica.com/hs-fs/hubfs/Canva%20images/Dr%20Charles%20Stewards%20joins%20UKIST%20as%20friend.png?width=320&height=192&name=Dr%20Charles%20Stewards%20joins%20UKIST%20as%20friend.png)
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Congenica's Dr Charles Steward joins the “friends” of the UK infantile Spasms Trust as an advocate and advisor
![Redressing the balance: Ring Chromosome 20 Syndrome](https://blog.congenica.com/hs-fs/hubfs/Canva%20images/Canva%20Design%20DAEb0qVkEFM.png?width=320&height=192&name=Canva%20Design%20DAEb0qVkEFM.png)
Redressing the balance: Ring Chromosome 20 Syndrome
Congenica welcomes Allison Watson to talk about her experiences of Ring Chromosome 20 (R(20) - an ultra-rare epilepsy syndrome.
![Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy](https://blog.congenica.com/hs-fs/hubfs/xtalks%20snip.png?width=320&height=192&name=xtalks%20snip.png)
Seeding a Life-Changing International Genomic Insight Alliance to Treat Pediatric Epilepsy
A webinar with experts from Sanford Health and Congenica discussing the applications of genomics to the research and treatment of pediatric epilepsy.
![Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy](https://blog.congenica.com/hs-fs/hubfs/Adam_clatworthy%28epilepsey%29_children.jpg?width=320&height=192&name=Adam_clatworthy%28epilepsey%29_children.jpg)
Why my five-year-old daughter is my inspiration as we fight to understand her sister’s epilepsy
March 26 is #Purpleday, an international awareness day that aims to get people talking about epilepsy and raise awareness of the condition. Congenica welcomes guest blogger Adam Clatworthy to tell ...