---
title: Recent Posts | Menkessyndrome
description: Menkessyndrome |
---

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# Latest News and Blogs

![How we learnt about Menkes Syndrome](https://blog.congenica.com/hs-fs/hubfs/Patient%20Advocacy%20%26%20Engagement%20(2).png?width=320&height=192&name=Patient%20Advocacy%20%26%20Engagement%20(2).png)

 7/23/2021

#### [How we learnt about Menkes Syndrome](https://blog.congenica.com/menkes-syndrome)

For our latest patient guest blog, we welcome Daniel DeFabio, Co-Founder of DISORDER: The Rare Disease Film Festival. Daniel and his wife Tina lost their eldest son Lucas when he was 11 years old to ...

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