Posted
23rd
July
2021
Posted
9th
July
2021
Discovering Glut1 Deficiency Syndrome
Posted
23rd
June
2021
Raising awareness of Dravet Syndrome
Posted
18th
June
2021
Our story of Norrie Disease
Posted
11th
June
2021
Mutual Collaboration focus for CRDN Companies Forum
Posted
4th
June
2021
Helping to Further the Patient Impact of Genomics
Posted
28th
May
2021
How Schinzel-Giedion Syndrome (SGS) has changed our lives
Posted
21st
May
2021
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted
14th
May
2021
Our CHAMP1 journey
Posted
11th
May
2021
Dr Charles Steward elected to the ICPGC GC
Posted
30th
April
2021
SCN8A – the needle in the haystack
Posted
23rd
July
2021
How we learnt about Menkes Syndrome
Posted July
Jul
9th
2021
Discovering Glut1 Deficiency Syndrome
Posted June
Jun
23rd
2021
Raising awareness of Dravet Syndrome
Posted June
Jun
18th
2021
Our story of Norrie Disease
Posted June
Jun
11th
2021
Mutual Collaboration focus for CRDN Companies Forum
Posted June
Jun
4th
2021
Helping to Further the Patient Impact of Genomics
Posted May
May
28th
2021
How Schinzel-Giedion Syndrome (SGS) has changed our lives
Posted May
May
21st
2021
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted May
May
14th
2021
Our CHAMP1 journey
Posted May
May
11th
2021
Dr Charles Steward elected to the ICPGC GC
Posted April
Apr
30th
2021
