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Blog, Patient Advocacy, RareDiseases, NorrieDisease, Chapter 1
Our story of Norrie Disease
Posted 18th June 2021

Our story of Norrie Disease

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Blog , Patient Advocacy , RareDiseases , Schinzel-Giedion Syndrome , Chapter 1
How Schinzel-Giedion Syndrome (SGS) has changed our lives
Posted 28th May 2021

How Schinzel-Giedion Syndrome (SGS) has changed our lives

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Blog , Patient Advocacy , epilepsy , RareDiseases , Chapter 8
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted 21st May 2021

Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

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Blog , Patient Advocacy , Champ1 , RareDiseases
Our CHAMP1 journey
Posted 14th May 2021

Our CHAMP1 journey

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Blog , Patient Advocacy , RareDiseases , NorrieDisease , Chapter 1
Our story of Norrie Disease
Posted 18th June 2021

Our story of Norrie Disease

Read More
Blog , Patient Advocacy , RareDiseases , Schinzel-Giedion Syndrome , Chapter 1
How Schinzel-Giedion Syndrome (SGS) has changed our lives
Posted May May 28th 2021

How Schinzel-Giedion Syndrome (SGS) has changed our lives

Read More
Blog , Patient Advocacy , epilepsy , RareDiseases , Chapter 8
Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust
Posted May May 21st 2021

Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

Read More
Blog , Patient Advocacy , Champ1 , RareDiseases
Our CHAMP1 journey
Posted May May 14th 2021

Our CHAMP1 journey

Read More
previous
1 2 3 4
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