Raising awareness of Dravet Syndrome

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Our story of Norrie Disease

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How Schinzel-Giedion Syndrome (SGS) has changed our lives

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Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

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Our CHAMP1 journey

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Raising awareness of Dravet Syndrome

Read More

Our story of Norrie Disease

Read More

How Schinzel-Giedion Syndrome (SGS) has changed our lives

Read More

Dr Charles Steward joins as “friend” of the UK Infantile Spasms Trust

Read More

Our CHAMP1 journey

Read More